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Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

Health & Fitness:Medicine

Episode 71 | Andrew Brandt is fighting back - for all of us.

Episode 71 | Andrew Brandt is fighting back - for all of us.

2022-09-26
Download

Andrew Brandt has been suffering from sarcoidosis for more than five years.  Lungs. Nervous system.  Skin.  And yet, he runs every day.  And by that, I mean EVERY day.  No matter how bad he feels.  He will reveal his impressive streak during the interview.  In the meantime, he is using programs offered by his company -- and his leadership skills, to raise serious money for the Foundation for Sarcoidosis Research. In this episode of the FSR Sarc Fighter podcast, Andrew tells his story, and we will also hear from FSR Development Director Angela Freelander, who will not only thank Andrew -- but explain why his gift is so important to the greater good.

 

#Makeitvisible https://www.stopsarcoidosis.org/fsr-updates-and-publications/

Kinevant

  • www.kinevant.com
  • www.sarcoidosistrial.com
  • ClinicalTrials.gov listing for RESOLVE-Lung: https://clinicaltrials.gov/ct2/show/NCT05314517
  • ClinicalTrials.gov listing for RESOLVE-Heart: https://clinicaltrials.gov/ct2/show/NCT05351554

The New FSR Initiative

https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-launches-groundbreaking-global-rare-disease-initiative/

Nourish by Lindsey: https://www.nourishbylindsey.com/

Dr. Jinny Tavee's book, The Last Day of Suffering: https://www.amazon.com/Last-Day-Suffering-Health-Happiness/dp/0615542751

Yale University and sarcoidosis skin treatment | Dr. William Damsky: https://news.yale.edu/2018/12/26/yale-experts-treat-severe-disfiguring-sarcoidosis-novel-therapy

Stanford University Clinical trial | Dr. Mathew Baker: https://med.stanford.edu/sarcoidosis/clinical-trial.html

MORE FROM JOHN

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser!

If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  carlinagency@gmail.com

view more

More Episodes

Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
2023-10-09
Episode 97 | Joel Rosen is fighting sarcoidosis and fighting for you at the same time.
2023-09-25
Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cause!
2023-09-11
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoidosis in perspective.
2023-08-28
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc patients get a fair shake at transplant time?
2023-08-14
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Guard.
2023-07-31
Episode 92 | Researcher Dr. Stephen Tilley on where we got sarcoidosis
2023-07-17
Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.
2023-07-03
Episode 90 | Mathew Campbell ’s Sarc went from his lungs to his heart. And FSR Crystal Gala highlights
2023-06-19
Episode 89 | What does your DNA have to do with Sarcoidosis? An FSR Town Hall.
2023-06-05
Episode 88 | MaryKay Reidenbach has been fighting the fight for 28 years.
2023-05-22
Episode 87 | Writer Rebeccca Stanfel on the Pain from Sarcoidosis and Legitimate Need for Opioids.
2023-05-08
Episode 86 | Betsy Bennett beat breast cancer - but Sarcoidosis arrived shortly after.
2023-04-24
Episode 85 | An FSR Town Hall - Getting closer to the first ever drug designed to fight Sarcoidosis
2023-04-10
Episode 84 | A patient story to go along with Sarcoidosis Awareness month and how FSR is leading the fight.
2023-04-03
Episode 83 | Tony Haskel thought his heart was healthy. Then came Sarcoidosis.
2023-03-27
Episode 82 | Sam Wassel’s unexplained abdominal pain was sarcoidosis - plus Cycle4Sarc goes public
2023-03-13
Bonus Episode | FSR Town Hall - Uncovering the Future of Sarcoidosis Treatment and Clinical Trials
2023-03-06
Episode 81 | Wade Tomlinson tries to walk away from sarcoidosis.
2023-02-20
Episode 80 | John riffs on sarcoidosis clinical trial opportunities and ... Disney
2023-02-06
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