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Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

Health & Fitness:Medicine

Episode 71 | Andrew Brandt is fighting back - for all of us.

Episode 71 | Andrew Brandt is fighting back - for all of us.

2022-09-26
Download

Andrew Brandt has been suffering from sarcoidosis for more than five years.  Lungs. Nervous system.  Skin.  And yet, he runs every day.  And by that, I mean EVERY day.  No matter how bad he feels.  He will reveal his impressive streak during the interview.  In the meantime, he is using programs offered by his company -- and his leadership skills, to raise serious money for the Foundation for Sarcoidosis Research. In this episode of the FSR Sarc Fighter podcast, Andrew tells his story, and we will also hear from FSR Development Director Angela Freelander, who will not only thank Andrew -- but explain why his gift is so important to the greater good.

 

#Makeitvisible https://www.stopsarcoidosis.org/fsr-updates-and-publications/

Kinevant

  • www.kinevant.com
  • www.sarcoidosistrial.com
  • ClinicalTrials.gov listing for RESOLVE-Lung: https://clinicaltrials.gov/ct2/show/NCT05314517
  • ClinicalTrials.gov listing for RESOLVE-Heart: https://clinicaltrials.gov/ct2/show/NCT05351554

The New FSR Initiative

https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-launches-groundbreaking-global-rare-disease-initiative/

Nourish by Lindsey: https://www.nourishbylindsey.com/

Dr. Jinny Tavee's book, The Last Day of Suffering: https://www.amazon.com/Last-Day-Suffering-Health-Happiness/dp/0615542751

Yale University and sarcoidosis skin treatment | Dr. William Damsky: https://news.yale.edu/2018/12/26/yale-experts-treat-severe-disfiguring-sarcoidosis-novel-therapy

Stanford University Clinical trial | Dr. Mathew Baker: https://med.stanford.edu/sarcoidosis/clinical-trial.html

MORE FROM JOHN

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser!

If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  carlinagency@gmail.com

view more

More Episodes

Episode 60 | Jack Boepple’s cardiac sarcoidosis hit him like a linebacker. And he would know.
2022-04-25
Episode 59 | Angelica wants to know how her grandmother died.
2022-04-11
Episode 58 | Time to get ready for Sarcoidosis Awareness Month!
2022-03-28
Episode 57 | Sarc Patient Robin Goble has lost her balance, but she’s fighting to keep her life upright.
2022-03-14
Episode 56 | Dr. Shu-Yi Liao wants to know how sarcoidosis moves in the body.
2022-02-28
Episode 55 | Erica Courtenay-Mann Has Sarcoidosis on her Vocal Cords. But she is speaking out!
2022-02-14
Bonus Episode | Universal Barriers in Dealing with a Chronic Disease: A Sarcoidosis Perspective
2022-02-07
Episode 52 | Dr Divya Patel and Novartis are looking for a few good Sarc patients
2022-01-31
Episode 54 | Calvin Harris’ lungs are clogged with Sarcoidosis -- but he wants to run a marathon.
2022-01-17
Episode 53 | Reasons for hope in the fight against Sarcoidosis in 2022
2022-01-03
Episode 51 | Amy Whaley fights on through a life that was different than she imagined.
2021-12-20
Episode 50 | Warren Robinson‘s father died suddenly. And the family struggled to find out why.
2021-12-06
Episode 49 | Adam Bernardi has sarc in all the wrong places.
2021-11-22
Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis specialist with a unique approach to fighting the disease
2021-11-08
Episode 47 | Women of Color Fight Back!
2021-10-25
Episode 46 | Lisa Pflug is early in her journey with neurosarcoidosis, but already suffering the effects.
2021-10-11
Episode 45 | Fantastic results from trial of new sarcoidosis drug from aTyr Pharma
2021-09-27
Episode 44 | Brandi Cleaver faces down what may be a terminal case of sarcoidosis.
2021-09-13
Episode 43 | Joe McCorry has been fighting Sarcoidosis for a long, long time.
2021-08-30
Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
2021-08-16
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