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The Rare and Resilient - ONE in 5000 Podcast

The Rare and Resilient - ONE in 5000 Podcast

Health & Fitness:Medicine

Episode 41 - Interview with Holly & Matt from Florida USA, parents of 18 mth old Edison, who was born with IA/ARM

Episode 41 - Interview with Holly & Matt from Florida USA, parents of 18 mth old Edison, who was born with IA/ARM

2023-01-13
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For episode 41, we are joined by Holly and Matt from Florida, USA who are the parents of their 18 month old son Edison who was born with IA/ARM as well as a congenital heart condition and associated VACterL issues. Holly takes us through their journey of initial heart diagnosis during her pregnancy, then the shock of the IA/ARM at birth and then having to deal with airway issues and navigating his multiple surgeries. Matt then shares his perspective as a Dad and how his personal medical experiences has enabled him to support Holly and advocate for Edison. 

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More Episodes

Episode 51 - Interview with Sinead from Dublin, Ireland, mother of 11 year old Matthew born with IA/ARM
2024-08-16 145
Episode 50 - Interview with medical professionals on Pelvic Floor Physical Therapy (PFPT) for IA/ARM patients (children & adults)
2023-12-22 179
Episode 49 - Interview with Monica from New Jersey USA, mother of 18 mth old Jordon, born with IA/ARM
2023-10-24 212
Episode 48 - Interview with Sharone from New York USA, mother of eight year old David, born with IA/ARM
2023-05-06 179
Episode 47 - Interview with Dr Alessandra Gasior, Pediatric & Adult Colorectal Surgeon at Nationwide Children’s & Ohio State University Medical Centre
2023-04-29 160
Episode 46 - Interview with Melissa from Bristol, England, mother of 3 & 1/2 year old Halle, born with IA/ARM
2023-03-03 190
Episode 45 - Interview with Lily, 19 year old IA/ARM adult from Washington State, USA
2023-02-20 219
Episode 44 - Interview with Jess from Shropshire, England, mother of 3 year old (almost 4) Felicity, born with IA/ARM
2023-02-06 186
Episode 43 - Interview with Taylorann, 22 year old IA/ARM adult from Ohio, USA
2023-02-03 280
Episode 42 - Interview with Hattie from Peterborough England, mother of nearly 4 year old Willow, born with Anal Stenosis (IA/ARM)
2023-01-19 132
Episode 40 - Interview with Bristol from Tennessee USA, mother of 2 year old Roman who was born with IA/ARM
2023-01-07 113
Episode 39 - Interview with Joe, 32 year old IA/ARM adult from Durham County, England
2022-12-05 349
Episode 38 - Interview with Kari from South Carolina USA, mother of 14 month old Luca who was born with IA/ARM
2022-11-09 194
Episode 37 - Interview with Naomi from Yorkshire UK, mother of 3 year old Ralph who was born with IA/ARM
2022-10-12 167
Episode 36 - Interview with Nat from Melbourne, Australia, mother of 18 month old Levi who was born with IA/ARM
2022-09-21 106
Episode 35 - Interview with Dr Carlos Reck-Borneo, Pediatric Colorectal Surgeon from Landesklinikum Mödling, Lower Austria
2022-07-02 159
Episode 34 - Interview with Noah (14 years old) who was born with IA/ARM and his mother Amy from Ohio, USA
2022-06-06 150
Episode 33 - Interview with Lori, an IA/ARM mother and Executive Director of Pull-Thru Network
2022-05-22 144
Episode 32 - Interview with Maddie, 25 years old who was born with IA/ARM (Cloaca) from USA
2022-04-30 369
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