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The Rare and Resilient - ONE in 5000 Podcast

The Rare and Resilient - ONE in 5000 Podcast

Health & Fitness:Medicine

Episode 41 - Interview with Holly & Matt from Florida USA, parents of 18 mth old Edison, who was born with IA/ARM

Episode 41 - Interview with Holly & Matt from Florida USA, parents of 18 mth old Edison, who was born with IA/ARM

2023-01-13
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For episode 41, we are joined by Holly and Matt from Florida, USA who are the parents of their 18 month old son Edison who was born with IA/ARM as well as a congenital heart condition and associated VACterL issues. Holly takes us through their journey of initial heart diagnosis during her pregnancy, then the shock of the IA/ARM at birth and then having to deal with airway issues and navigating his multiple surgeries. Matt then shares his perspective as a Dad and how his personal medical experiences has enabled him to support Holly and advocate for Edison. 

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More Episodes

Episode 31 - Interview with Dr Alberto Pena - Pioneer of PSARP surgery
2022-04-26 386
Episode 30 - Interview with Christina from Washington State USA, mother of 3 year old Eliza who was born with IA/ARM
2022-04-18 122
Episode 29 - Interview with Dr Andrea Bischoff, Director of International Center for Colorectal & Urological Care - Children’s Hospital Colorado, USA
2022-03-12 301
Episode 28 - Interview with Daria from Spain, Mother of 5 year old Daniel born with IA/ARM & Tracheo-Esophageal fistula,
2022-03-04 96
Episode 27, Interview with Emma, a 47 year old IA/ARM Adult from Queensland, Australia
2022-02-26 161
Episode 26 - Interview with Angel, Mother of 5 year old son Wolf from Australia who was born withIA/ARM
2022-02-21 130
Episode 25 - Interview with Carlo, a 37 year old IA/ARM Adult from New York, USA
2022-02-11 171
Episode 24 - Interview with Billie - Mother of 14 month old Jimmy from England who was born with IA/ARM
2022-02-02 439
Episode 23 (Part 2) Interview with Dr Christina Low Kapalu, Pediatric Psychologist, Children’s Mercy Hospital Kansas City, USA.
2021-12-29 115
Episode 23 (Part 1) - Interview with Dr Christina Low Kapalu - Pediatric Psychologist - Children‘s Mercy Hospital, Kansas City, USA
2021-12-19 227
Episode 22 - Interview with Denise - Mother of 19 year old son Wilson from USA who was born with IA/ARM
2021-11-30 129
Episode 21 - Interview with Suzie - Mother of 10 year old son Kaden from USA who was born with IA/ARM.
2021-11-09 109
Episode 20 - Interview with Cassandra - Mother of 22 mth old son Malachi from USA, who was born with IA/ARM and Down Syndrome
2021-10-24 119
Episode 19 - Interview with Dr Marc Levitt, Chief of Colorectal & Pelvic Reconstruction, Children‘s National Hospital, Washington DC USA
2021-10-11 394
Episode 18 - Interview with Assoc. Prof. Rebecca Rentea - Pediatric Colorectal Surgeon - Children‘s Mercy Hospital Kansas City USA
2021-09-27 181
Episode 17 - Interview with Dr Bruno Martinez, Pediatric Colorectal Surgeon - Moctezuma Children‘s Hospital, Mexico City, Mexico
2021-09-12 135
Episode 16 - Interview with Jack from Canada, 11 years old born with IA/ARM and his mother Mary
2021-09-02 159
Episode 15 - Interview with Katrina, 63 years old from England who was born with IA/ARM (Cloaca).
2021-08-20 191
Episode 14 - Interview with Mark, father of a 3 1/2 year son from USA born with IA/ARM, Neurogenic Bladder & Single Kidney.
2021-08-16 172
Episode 13 - Interview with Laura & Ryan, parents of 9 year old Peyton from USA who was born with IA/ARM (Cloaca)
2021-08-06 181
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