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Wait, How Do You Spell That? A Rare Disease Podcast

Wait, How Do You Spell That? A Rare Disease Podcast

Health & Fitness

The Economic Burden of Rare Disease

The Economic Burden of Rare Disease

2021-02-26
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This week, we speak with Annie Kennedy from the EveryLife Foundation about their groundbreaking study examining the economic burden of rare disease. We're joined by Marissa Penrod from Team Joseph, a Duchenne muscular dystrophy nonprofit to discuss how these numbers assist in rare disease advocacy. Read the full study here: www.everylifefoundation.org/burden-study

Learn more about the EveryLife Foundation for Rare Diseases here: www.everylifefoundation.org

Learn more about Team Joseph here: www.teamjoseph.org

view more

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