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Wait, How Do You Spell That? A Rare Disease Podcast

Wait, How Do You Spell That? A Rare Disease Podcast

Health & Fitness

The Economic Burden of Rare Disease

The Economic Burden of Rare Disease

2021-02-26
Download

This week, we speak with Annie Kennedy from the EveryLife Foundation about their groundbreaking study examining the economic burden of rare disease. We're joined by Marissa Penrod from Team Joseph, a Duchenne muscular dystrophy nonprofit to discuss how these numbers assist in rare disease advocacy. Read the full study here: www.everylifefoundation.org/burden-study

Learn more about the EveryLife Foundation for Rare Diseases here: www.everylifefoundation.org

Learn more about Team Joseph here: www.teamjoseph.org

view more

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