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CURE SYNGAP1 PODCAST aka SYNGAP10

CURE SYNGAP1 PODCAST aka SYNGAP10

Business:Non-Profit

Mike Graglia updates Syngap Families on the work of SRF.  - Episode 1 of #Syngap10 - March 12th, 2021

Mike Graglia updates Syngap Families on the work of SRF. - Episode 1 of #Syngap10 - March 12th, 2021

2021-03-12
Download

Mike's first episode!  A quick update on the week in SYNGAP1, what the SynGAP Research Fund did this week on behalf of families.

- Engaged with a new BioPharma company interested in starting a program on SYNGAP1.

- Connected ANOTHER company with CIITIZEN.com/SYNGAP1 so that they can use the data we have to do a trial as quickly as possible.

- How to sign up for CIITIZEN.com/SYNGAP1

- How #Sprint4Syngap is going

- A preview of some work we are doing on drug discovery with Worms and Fish

- A preview of work we are planning on EEG Biomarkers

- Why biomarkers matter

Learn more at www.SyngapResearchFund.org 

view more

More Episodes

NHS in Colorado! Real talk about new therapies. Planning for RAA & the Conf! #S10e142
2024-05-31 173
SRF LT Webinar, MDBR, Therapies, Learning at Conferences. #S10e141
2024-05-20 201
Who will fight for our kids when we aren’t there? SRF and your crew. #S10e140
2024-05-02 136
SRF is a “Get-to…” not a “Have-to..”  Do something & Go big.  #S10e139
2024-04-23 108
Grateful and grieving. SRF is growing with our community, all 1,400 of us! #S10e138
2024-04-04 160
Stoke Praxis Longboard, CHOP & Adult Studies, Hope4theCure, Sprint4Syngap, & Social Matters #S10e137
2024-03-26 163
SYNGAP1 Ciitizen Paper is out!  UCB Survey.  UCSF is discovering SYNGAP.  #Sprint4SYNGAP 2024 is on!  Fitter at the WH. #S10e136
2024-03-16 134
#RareOnTheHill and #SRFboard in DC were epic. It’s going to be a great, year, get some #RareBrewCoffee! #S10e135
2024-03-04 162
A very important questionnaire. Repurposing update & ethics. Grant shaping in progress! #S10e134
2024-02-24 253
What is this SYNGAP1 illness / disease / syndrome / NDD / DEE / MRD5 / NSID actually called?  #S10e133
2024-02-13 154
Congratulations to Encoded, Jaguar, Aparito and what will we count? How will we know these therapies are working? #S10e132
2024-02-07 154
SYNGAP1 is complex, we need to partner with our clinicians to improve care & get ready for repurposing.  #S10e131
2024-01-22 176
2024 is off to a GREAT start. Time to get clinical, let’s get all these studies oversubscribed and make sure industry knows we are ready. #S10e130
2024-01-12 132
Happy New Year! Happy 10th Birthday Tony! Congrats #Longboard. Publication update. Good feedback and frustrating stories. #S10e129
2024-01-05 157
Over the break: Studies to do, Research & Press to read, Funds to raise, Resources to update, Resolve to Volunteer  #S10e128
2023-12-22 372
Ciitizen continues to evolve, but essential aspects remain: SYNGAP1 as a lead program & a strong team.  +Support Harper #JuggleIsReal - #S10e127
2023-12-14 130
A patient dosed, new site, audited financials, conference reviews, EOY giving, two studies to join! - #S10e126
2023-12-12 118
ICD-11, SYNGAP1 Adult Paper & Study, AES, #SyngapConf, Frazier Eye Tracking Study - #S10e125
2023-12-06 246
Giving Tuesday, #SyngapConf, #FasterCures & Happy Thanksgiving - #S10e123
2023-11-18 129
The more we own our EEGs, the sooner we get a biomarker.  Simple. And remember to get Dinner tickets for the conference! - #S10e123
2023-11-03 169
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