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CURE SYNGAP1 PODCAST aka SYNGAP10

CURE SYNGAP1 PODCAST aka SYNGAP10

Business:Non-Profit

Mike Graglia updates Syngap Families on the work of SRF.  - Episode 1 of #Syngap10 - March 12th, 2021

Mike Graglia updates Syngap Families on the work of SRF. - Episode 1 of #Syngap10 - March 12th, 2021

2021-03-12
Download

Mike's first episode!  A quick update on the week in SYNGAP1, what the SynGAP Research Fund did this week on behalf of families.

- Engaged with a new BioPharma company interested in starting a program on SYNGAP1.

- Connected ANOTHER company with CIITIZEN.com/SYNGAP1 so that they can use the data we have to do a trial as quickly as possible.

- How to sign up for CIITIZEN.com/SYNGAP1

- How #Sprint4Syngap is going

- A preview of some work we are doing on drug discovery with Worms and Fish

- A preview of work we are planning on EEG Biomarkers

- Why biomarkers matter

Learn more at www.SyngapResearchFund.org 

view more

More Episodes

All About #Sprint4Syngap 2023! #S10e103
2023-05-03 203
McKee Data Webinar on Thursday! #SPRINT4SYNGAP in 4 days! The Emergency Plan, DSF Caregiver Connect, PGx, Cool Paper, Biorepository Collection! #S10e102 #DNAday
2023-04-25 212
SRF Supported Publication on NET, Siblings, Webinars, Frog Video, Clinical Trial Questions… #S10e101
2023-04-15 257
💯Episode 100!  Survey, GI, Biorepository, Press, PG, ASO Training, Sprint3 in 3 weeks!!!  #S10e100
2023-04-08 206
🌞🐒🐸SYNGAP1 is HOT: Gene Therapies, Monkey, COMBINEDBrain, Biorepository, Frazier, Frogs, 1,251 patients & studies #S10e99
2023-04-01 219
Building the SYNGAP1 SRF House - using the Milken Fastercures Research Partnership Maturity Model - #S10e98
2023-03-24 306
Talking to families with 2 year olds, 3 Webinars not to miss, and Sprint4Syngap, Stoke & Praxis Updates, GG Next 2023 Report - #S10e97
2023-03-16 233
Rare Disease Day 2023 was epic and you should have been there.  Sprint and Webinar update. #S10e96
2023-03-06 267
Rare Disease Day 2023 - Hattie Video, Coller & McKee Webinars, Missense SYNGAP1 iPSC, $20k, Apply for a Grant, Sprint4Syngap, Join us. #S10e95
2023-02-28 215
Time to fundraise for SYNGAP1 Research! Great info on Webinars, Blog, PRAX-222 & SynGAP Stories… #S10e94
2023-02-23 188
More on ENDD gift at Penn, but first, Finding SYNGAP1 Patients, Hotels & Grief in Florida - #S10e93
2023-02-13 241
10 Reasons SYNGAP-land is hopeful & exciting today #S10e92
2023-02-08 270
Why we need to keep talking about SYNGAP1 #S10e91
2023-01-31 222
Seven Ways to advance SYNGAP1 Research this week. Post video, take survey, tell us your opinion on Rare-X/Simons, Update Ciitizen, #SRFWW, JR’s book, Plan. #S10e90
2023-01-21 187
JR’s book, ORCA & RareX, Data talks, Update Ciitizen, Syndrome Management, ASOs for the Brain, Libby & Espy #S10e89
2023-01-15 245
New Grant, Rare Affair, SYNGAP1 research and events #S10e88
2023-01-10 229
SRF 2022 Numbers, Great Press, a wonderful wedding. #S10e87
2023-01-04 243
#SYNGAPconf22 was a hit, join us in 2023… #S10e86
2022-12-29 201
#AES2022 clearly showed us that SRF & SYNGAP1 have arrived… #S10e85
2022-12-29 191
#ImpatientOptimism is the appropriate feeling for this moment… #S10e84
2022-11-29 208
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