The CFRI CF Community Voices Podcast
Health & Fitness
Weight gain has historically been an issue for many individuals with cystic fibrosis, and nutritional status and lung function are closely linked. Dr. Virginia Stallings, a nutrition pediatrician and professor of pediatrics at Children’s Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine has worked in nutrition clinical care and research for more than 30 years. Dr. Stallings designed and led the NIH-funded study on Encala™ for people with cystic fibrosis. In this podcast she discusses pancreatic insufficiency and the reasons for poor nutrient absorption among many with CF, and the results of the clinical trials with Encala in improving nutritional status.
CF Community Voices is made possible through grants from Vertex Pharmaceuticals, Genentech, Chiesi USA and Viatris.
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Unleashed Stories: CF Pet Perspectives (Video)
Unleashed Stories: CF Pet Perspectives (Audio)
Colon Cancer and CF: Panel (Video)
Colon Cancer and CF: Panel (Audio)
Recursos de asistencia a paciente
Cancer de Colon y Fibrosis Quistica
Diversity, Equity and Inclusion in Cystic Fibrosis
Role of CFTR Arginine-933 in FDA-Approved Drug Potentiation - Stephen Aller, PhD (Video)
Role of CFTR Arginine-933 in FDA-Approved Drug Potentiation - Stephen Aller, PhD (Audio)
Pathways Balancing Basal Mucin and CFTR-Mediated Fluid Secretion in the Human Distal Airway - Kenichi Okuda, MD, PhD (Video)
Pathways Balancing Basal Mucin and CFTR-Mediated Fluid Secretion in the Human Distal Airway - Kenichi Okuda, MD, PhD (Audio)
Embracing the Future: Aging with CF - Ahmet Uluer, DO, MPH; CF and Colon Cancer: My Lived Experience - Anna Payne
Panel: Parenting with CF - Lucy Barnes; Matthew DeFina; Carl Robinson; moderated by Mary Helmers, RN
Advances in mRNA Therapy: New Applications for Cystic Fibrosis - Deepika Polineni, MD, MPH
Inside The Art Of Dominic Quagliozzi - Part 2 (Video)
Inside The Art Of Dominic Quagliozzi - Part 1 (Video)
Inside The Art Of Dominic Quagliozzi - Part 2 (Audio)
Inside The Art Of Dominic Quagliozzi - Part 1 (Audio)
Understanding and Managing Pain in CF: A Biopsychosocial Approach - Amanda Bruce, PhD; Deborah Friedman, PhD
Improving CF Airway Mucociliary Clearance: Toward Transition from Animals to Humans - Carlos Milla, MD; Nam Soo Joo, PhD
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