Are patients ‘experts’? Does lived experience automatically mean one has expertise? What are we really saying, or accomplishing, when we call patients experts? We think about these questions and talk to Frank Gavin about his article on healthydebate.ca. Frank isn’t sold on the ‘expert’ label as it applies to patient experience, and he explains why in our conversation.
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Mentioned in this episode:
The risks of equating ‘lived experience’ with patient expertise by Frank Gavin
How do patients attain equal status if they’re seen as ‘non-expert’? by Francine Buchanan
In Part 1, Frank mentions a cartoon/meme that describes a particular physician-patient dynamic. We couldn't find it in cartoon form but the idea was popularized in this tweet: https://twitter.com/trishgreenhalgh/status/1000308119115915264
Frank Gavin on Twitter
Francine Buchanan on Twitter
Caregiving and Work
”How did we do?” : A debrief on the role of Lived Experience Advisors in a healthcare research project
Spring Update 2023: Checking in with Jen and Em
Beyond Mandates: The Essential Input of Residents in Long-term Care Policy (Health Policy Series)
Critical Reflections on Public Engagement (Health Policy Series)
Transformative Public Engagement: Pitfalls, Possibilities and Promise - keynote by Dr. Jamila Michener (Health Policy Series)
Understanding Legitimacy in Public and Patient Engagement, with Katherine Boothe (Health Policy Series)
Deliberation, Democracy and Public Engagement: A Conversation with Kim McGrail (Health Policy Series
The Business and Politics of Engagement, with John Perenack of StrategyCorp (Health Policy Series)
Black Communities, Medical Mistrust and COVID Response, with Alpha Abebe and Rhonda C. George (Health Policy Series)
”Flipping the script” on narratives about Black communities and engagement, with Alpha Abebe and Rhonda C. George (Health Policy Series)
Health Policy Series Kick-off!: A retrospective look at public engagement, with Julia Abelson
Onwards and upwards: Jen and Emily check in
Season 3 Finale: Patient Partner Reflections, brought to you by OSSU
Moral Distress in Engagement Professionals, with Mark Weir
Engagement in Context: Reflections from Jenn Broad and Paula Tookey of the South Riverdale Community Health Centre
Discussing Failures in Participatory Research, with Lori Ross
We‘re looking for patient partner stories and experiences!
Interview Extra: Advocacy and Health Equity, feat. Biba Tinga of the Sickle Cell Disease Association of Canada
Equity, Diversity, and Patient Engagement - with Dr. Nav Persaud
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