(Trigger warning: infant loss, heart defect). Thanks for joining us this week as we discuss a heavy topic: organ transplant discrimination in the Down syndrome community. This topic was born out of a recent tragedy with the passing of Zion Sarmiento, who was born with DS. Zion passed away on October 8th, just a week shy of 4 months old, after being denied a heart transplant by multiple hospitals. And the reasons they were denied are heart breaking. The truth is that many medical professionals, and society as a whole, do not see the worth and value of people with Down syndrome. But thankfully, the National DS Society is working hard to change that. And today, we’re telling you all the ways to take action, how to support Zion’s family, and what we can do everyday to shift the narrative.
Our thoughts and prayers are with the Sarmiento family.
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Read the article about Zion Sarmiento from livenation.org
Check out the Facebook page: Zion’s Army
Learn more about the topics discussed today: Nondiscrimination in Organ Transplantation Laws & Toolkit from the National DS Society
Click HERE to take action!
Read the article: Lawmakers introduce federal legislation to prevent organ transplant discrimination
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Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.
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--- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support209. End of School Year Reflections
208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)
207. ‘Peter Pan & Wendy’ Star: Noah Matthews Matofsky
206. Nurturing Meaningful Connections With Our Kids
205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko
204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward
203. Beyond Checking A Box
THROWBACK: Politics & Down Syndrome w/Kayla McKeon and Ashley Helsing
202. Living In Technicolor & Listening To Your Heart w/Jennifer Varanini Sanchez
THROWBACK: Following the Lead of Self-Advocates (ft. Matthew Schwab)
201. Sofia Sanchez: Filming ‘The Hunger Games’, Her New Book, Self-Advocacy, & Middle School
200. It's our 5 year anniversary!
199. What We Wish We Knew, Had, & Told Ourselves In The First Years…
198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools
197. Exposing The Roots (Racism, Ableism, Microagressions, + More)
196. Couples Q & A! (ft. our husbands)
195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry)
194. Undoing Ableism & Telling True Stories with April Aguilera (writer of "For Paloma")
193. Lets catch up!
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