(Trigger warning: infant loss, heart defect). Thanks for joining us this week as we discuss a heavy topic: organ transplant discrimination in the Down syndrome community. This topic was born out of a recent tragedy with the passing of Zion Sarmiento, who was born with DS. Zion passed away on October 8th, just a week shy of 4 months old, after being denied a heart transplant by multiple hospitals. And the reasons they were denied are heart breaking. The truth is that many medical professionals, and society as a whole, do not see the worth and value of people with Down syndrome. But thankfully, the National DS Society is working hard to change that. And today, we’re telling you all the ways to take action, how to support Zion’s family, and what we can do everyday to shift the narrative.
Our thoughts and prayers are with the Sarmiento family.
--
Read the article about Zion Sarmiento from livenation.org
Check out the Facebook page: Zion’s Army
Learn more about the topics discussed today: Nondiscrimination in Organ Transplantation Laws & Toolkit from the National DS Society
Click HERE to take action!
Read the article: Lawmakers introduce federal legislation to prevent organ transplant discrimination
LET’S CHAT
Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.
HELP US SHIFT THE NARRATIVE
Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!
--- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/supportTHROWBACK: Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
THROWBACK: Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)
THROWBACK: Diversity in the Down Syndrome Community
192. Tis' the Season!
191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP
190. Disability & The Church Pt 2
189. Motherhood, DS Advocacy, and Selling Funky Hawaiian Shirts (ft. Holly Simon, 21 Pineapples Shirt Co.)
188. Our 2022 Holiday Gift Guide!
187. Dental Anxiety & Down Syndrome (ft. Dr. Samantha Healy)
186. Our Response to the Ableist Comments on Netflix's "Love Is Blind"
185. What if my child with Down syndrome can't?
184. Busting Myths About Down Syndrome - ft. Madison Tevlin
183. Following the Lead of Self-Advocates (ft. Matthew Schwab)
182. A Day In the Life of Our Friend Jeremy (self-advocacy, independent living, + more)
181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team)
180. "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)
179. Disability & The Church
178. Healthy (and happy) Aging for Adults with DS - Ft. Margot & Bart from the National DS Society
177. Happiness IS Down Syndrome (ft. Misty Snyder)
176. The Ripple Effect (ft. Nancy & GiGi Gianni)
Create your
podcast in
minutes
It is Free
History Storytime - For Kids
Privacy Boys
Nonsensical Show
The Adventures of Huckleberry Finn
The Adventures of Sherlock Holmes
Dr. Laura Call of the Day
Focus on the Family with Jim Daly