(Trigger warning: infant loss, heart defect). Thanks for joining us this week as we discuss a heavy topic: organ transplant discrimination in the Down syndrome community. This topic was born out of a recent tragedy with the passing of Zion Sarmiento, who was born with DS. Zion passed away on October 8th, just a week shy of 4 months old, after being denied a heart transplant by multiple hospitals. And the reasons they were denied are heart breaking. The truth is that many medical professionals, and society as a whole, do not see the worth and value of people with Down syndrome. But thankfully, the National DS Society is working hard to change that. And today, we’re telling you all the ways to take action, how to support Zion’s family, and what we can do everyday to shift the narrative.
Our thoughts and prayers are with the Sarmiento family.
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Read the article about Zion Sarmiento from livenation.org
Check out the Facebook page: Zion’s Army
Learn more about the topics discussed today: Nondiscrimination in Organ Transplantation Laws & Toolkit from the National DS Society
Click HERE to take action!
Read the article: Lawmakers introduce federal legislation to prevent organ transplant discrimination
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--- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support175. Back to School Listener Q & A!
174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society)
173. EVERYONE BELONGS by Heather Avis (Behind the Scenes of Her NEW Children's Book- Out NOW!)
172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
171. What does belonging actually mean? (Storytelling Tour Recap with Heather + Josh Avis!)
170. Why I Became A Pediatrician for Individuals with Down syndrome (ft. Dr. Kishore Vellody)
169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos
168. When is it time to have "the talk" with your child with Down syndrome? (ft. Dr. Katie Frank, PhD, OTR/L)
167. Raising A #BossLady (ft. Rebecca Kutcher)
166. An Interview with An #IronFamily - ft. Jazmine & Chad Faries + Patrick Longstreth
165. Delivering HOPE w/A New DS Diagnosis (ft. Rick Smith, father + advocate!)
164. Choosing Your (Summer) Battles
163. What does success mean to you?
162. What happens after high school? (Ft. Val - Recent OT Grad + TLFP Producer!)
161. Let's Talk About Abortion & Disability
160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)
159. The Trouble With Self-Care
158. Faith, Healing, & Disability, ft. Amy Julia Becker (Mother/Author)
157. Sibling Dynamics & Down Syndrome
156. From Special Educator to Education Advocate, ft. Markeisha Hall
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