Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
In Episode 72 of the Sarc Fighter podcast, Regina Gordon, an FSR Advocate shares the story of how sarcoidosis has curtailed her life for decades. She bravely shares how the disease has spread from her lungs to her skin and lymph nodes and other parts of her body. But she is not willing to give up. She's improved her outlook and even earned two college degrees. Listen in to hear how she is getting it done! And be sure to listen at the end when she shares a poem she wrote about the battle!
Above: One of my Elk photos! And of course, above that Regina and I talking on the podcast!
Regina's Facebook page: https://www.facebook.com/groups/422755127748559
aTyr News Release: https://investors.atyrpharma.com/news-releases/news-release-details/atyr-pharma-announces-dosing-first-patient-pivotal-phase-3-efzo
FSR Webpage on Financial planning for life with Sarc: https://www.stopsarcoidosis.org/financial-assistance-support-for-those-living-with-sarcoidosis/
#Makeitvisible https://www.stopsarcoidosis.org/fsr-updates-and-publications/
The New FSR Initiative
https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-launches-groundbreaking-global-rare-disease-initiative/
Nourish by Lindsey: https://www.nourishbylindsey.com/
Dr. Jinny Tavee's book, The Last Day of Suffering: https://www.amazon.com/Last-Day-Suffering-Health-Happiness/dp/0615542751
Yale University and sarcoidosis skin treatment | Dr. William Damsky: https://news.yale.edu/2018/12/26/yale-experts-treat-severe-disfiguring-sarcoidosis-novel-therapy
Stanford University Clinical trial | Dr. Mathew Baker: https://med.stanford.edu/sarcoidosis/clinical-trial.html
MORE FROM JOHN
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Episode 56 | Dr. Shu-Yi Liao wants to know how sarcoidosis moves in the body.
Episode 55 | Erica Courtenay-Mann Has Sarcoidosis on her Vocal Cords. But she is speaking out!
Bonus Episode | Universal Barriers in Dealing with a Chronic Disease: A Sarcoidosis Perspective
Episode 52 | Dr Divya Patel and Novartis are looking for a few good Sarc patients
Episode 54 | Calvin Harris’ lungs are clogged with Sarcoidosis -- but he wants to run a marathon.
Episode 53 | Reasons for hope in the fight against Sarcoidosis in 2022
Episode 51 | Amy Whaley fights on through a life that was different than she imagined.
Episode 50 | Warren Robinson‘s father died suddenly. And the family struggled to find out why.
Episode 49 | Adam Bernardi has sarc in all the wrong places.
Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis specialist with a unique approach to fighting the disease
Episode 47 | Women of Color Fight Back!
Episode 46 | Lisa Pflug is early in her journey with neurosarcoidosis, but already suffering the effects.
Episode 45 | Fantastic results from trial of new sarcoidosis drug from aTyr Pharma
Episode 44 | Brandi Cleaver faces down what may be a terminal case of sarcoidosis.
Episode 43 | Joe McCorry has been fighting Sarcoidosis for a long, long time.
Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
Episode 41| Dr. Matt Baker is researching a promising new drug to fight sarc at Stanford University.
Episode 40 | Writer Rebecca Stanfel is bringing the sarcoidosis message to the masses. And, man, does she know the story.
Episode 39 | Dr. William Damsky may be on the verge of a sarcoidosis breakthrough.
Episode 38 | Sarcoidosis is world wide. How they fight it in the UK
Create your
podcast in
minutes
It is Free
Good Mood Revolution
The Relaxback UK Show
On Call With Dr. Anselm Anyoha
Precision Medicine Forum Podcast
The Doctor’s Farmacy with Mark Hyman, M.D.
The Peter Attia Drive