Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
In Episode 72 of the Sarc Fighter podcast, Regina Gordon, an FSR Advocate shares the story of how sarcoidosis has curtailed her life for decades. She bravely shares how the disease has spread from her lungs to her skin and lymph nodes and other parts of her body. But she is not willing to give up. She's improved her outlook and even earned two college degrees. Listen in to hear how she is getting it done! And be sure to listen at the end when she shares a poem she wrote about the battle!
Above: One of my Elk photos! And of course, above that Regina and I talking on the podcast!
Regina's Facebook page: https://www.facebook.com/groups/422755127748559
aTyr News Release: https://investors.atyrpharma.com/news-releases/news-release-details/atyr-pharma-announces-dosing-first-patient-pivotal-phase-3-efzo
FSR Webpage on Financial planning for life with Sarc: https://www.stopsarcoidosis.org/financial-assistance-support-for-those-living-with-sarcoidosis/
#Makeitvisible https://www.stopsarcoidosis.org/fsr-updates-and-publications/
The New FSR Initiative
https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-launches-groundbreaking-global-rare-disease-initiative/
Nourish by Lindsey: https://www.nourishbylindsey.com/
Dr. Jinny Tavee's book, The Last Day of Suffering: https://www.amazon.com/Last-Day-Suffering-Health-Happiness/dp/0615542751
Yale University and sarcoidosis skin treatment | Dr. William Damsky: https://news.yale.edu/2018/12/26/yale-experts-treat-severe-disfiguring-sarcoidosis-novel-therapy
Stanford University Clinical trial | Dr. Mathew Baker: https://med.stanford.edu/sarcoidosis/clinical-trial.html
MORE FROM JOHN
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Episode 38 | Sarcoidosis is world wide. How they fight it in the UK
Episode 37 | Sarc Fighter Charlton Harris is having a hard time breathing. A REALLY hard time.
Bonus Episode | Sarcoidosis and COVID-19 Presented by the Foundation for Sarcoidosis Research
Episode 36 | Sarc Fighter Janet Mockovciak is giving it her all.
Episode 35 | Nadia Silvera may need a double lung transplant. Thanks sarcoidosis.
Bonus Episode | Sarcoidosis Town Hall: Is Prednisone "Poison?" presented by the Foundation for Sarcoidosis Research
Episode 34 Lindsey Norenberg on how to eat to beat inflammation.
Episode 33 | John Riffs on an encounter with a Doc who is not Sarc Aware!
Episode 32 | April is Sarcoidosis Awareness month! Tricha Shivas tells us how to fight back!
Episode 31 | Susan Bassi's Life slowed to a crawl when Sarcoidosis made its appearance.
Episode 30 Kevin McDevitt's sarcoidosis spread from his finger ... to his heart!
Episode 29 Susie Torres fights for diagnosis as she battles Sarc and other illnessess. And - I explore the anti-inflammatory Elimination Diet
Episode 28 Sarc Fighter Andrena Johnson is making a Sacroidosis Documentary
Episode 27 Diet and CBD - Can they be effective? Ryan Norenberg offers proof.
Episode 26 Amy Cobb is a Nurse Practitioner treating COVID Patients - And Fighting Sarcoidosis in Her Own Body.
Episode 25 Tracy Bawtinheimer was a world traveling executive until...
Episode 24 Sarc Fighter Frank Rivera fights long Covid-19
Episode 23 Even doctors can get sarcoidosis. Taufiq Ahmad shares the story of his decline.
Episode 22 Meet Mary McGowan the new CEO of the Foundation for Sarcoidosis Research
Episode 21 Why Sarc is more prevalent in women with Ozioma Chioma PhD
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