Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
In Episode 72 of the Sarc Fighter podcast, Regina Gordon, an FSR Advocate shares the story of how sarcoidosis has curtailed her life for decades. She bravely shares how the disease has spread from her lungs to her skin and lymph nodes and other parts of her body. But she is not willing to give up. She's improved her outlook and even earned two college degrees. Listen in to hear how she is getting it done! And be sure to listen at the end when she shares a poem she wrote about the battle!
Above: One of my Elk photos! And of course, above that Regina and I talking on the podcast!
Regina's Facebook page: https://www.facebook.com/groups/422755127748559
aTyr News Release: https://investors.atyrpharma.com/news-releases/news-release-details/atyr-pharma-announces-dosing-first-patient-pivotal-phase-3-efzo
FSR Webpage on Financial planning for life with Sarc: https://www.stopsarcoidosis.org/financial-assistance-support-for-those-living-with-sarcoidosis/
#Makeitvisible https://www.stopsarcoidosis.org/fsr-updates-and-publications/
The New FSR Initiative
https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-launches-groundbreaking-global-rare-disease-initiative/
Nourish by Lindsey: https://www.nourishbylindsey.com/
Dr. Jinny Tavee's book, The Last Day of Suffering: https://www.amazon.com/Last-Day-Suffering-Health-Happiness/dp/0615542751
Yale University and sarcoidosis skin treatment | Dr. William Damsky: https://news.yale.edu/2018/12/26/yale-experts-treat-severe-disfiguring-sarcoidosis-novel-therapy
Stanford University Clinical trial | Dr. Mathew Baker: https://med.stanford.edu/sarcoidosis/clinical-trial.html
MORE FROM JOHN
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Episode 20 Mark Landiak was hiking the Grand Canyon, when ...
Episode 19 Desiree was a cover girl for health ... until.
Episode 18 Want to Feel Better? Mindy Buchanan talks today about the November FSR Summit and how it will help.
Episode 17 aTyr Pharma CEO Sanjay Shukla talks about how a new drug could be the answer for many sarc fighters!
Episode 16 Mary Morlino Fights Back After Sarc Knocks Her Down!
Episode 15 Reg Alexander Needed a New Heart
Episode 14 Barbara Mouradian Fights a two front battle with Sarc and still swims with sharks!
Episode 13 Angela Frelander talks about how you can help fight Sarcoidosis
Episode 12: Mark Steier sings the song of Sarcoidosis and tells his own sarc story.
Episode 11 Andrea and Reading Wilson -- Founders of the Foundation for Sarcoidosis Research
Episode 10 Kerry Wong Talks about how sarc stole her life
Bonus Podcast: Roundtable discussion on Sarcoidosis Associated Pulmonary Hypertension from Madrid, Spain
Episode 9 COVID-19 & Sarcoidosis: What are the real risks? First data with Dr. Robert Baughman
Episode 8 Patient Bob Gross tells his sarcoidosis story and more on sarc & COVID-19
Episode 7 My Methotrexate issues and Cheryl Bradford tells her sarcoidosis story
Episode 6 The Threat from COVID-19 with Jim Kuhn and Mindy Buchanan
Episode 5 Chasta Posey tells her Sarcoidosis story from blindness to finding a path to positivity
Episode 4 Maggie Hudson of FSR on how we are fighting sarcoidosis
Episode 3 Patient Frank Rivera bares his soul.
Episode 2 All About Sarcoidois with Dr. Simon Hart
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