We have a special mini-series we’re releasing this week: Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks. We each cover a different angle on patient stories and storytelling – together they provide a rich picture of some of the challenges, concerns, and also opportunities when it comes to engaging in storytelling. We will be sharing all three episodes on our platforms.
This is the 2nd of 3, and it’s produced by us! Organizations and Patient Stories
Our guests are Carol Fancott (Director of Patient Partnerships and Engagement at the newly amalgamated organization that's brought together the Canadian Foundation for Healthcare Improvement and Canadian Patient Safety Institute) and Daniel Z. Buchman (Bioethicist and Independent Scientist at the Center for Addiction and Mental Health, Assistant Professor at the Dalla Lana School of Public Health at the University of Toronto, and member of the University of Toronto Joint Center for Bioethics).
Carol shares her thoughts on patient stories and storytelling based on the subject of her PhD, which is: how organizations use patient stories for learning. We talk about ‘spectating’, control and power, using dialogue to enhance learning, and how stories are just one input of many when it comes to understanding patient experience. Dan then helps us think through some of the moral and ethical implications about what organizations are asking of patients when it comes to telling their story.
[download transcript]
Mentioned in this episode:
Daniel Z. Buchman on twitter
SPORcast on twitter
PEP Talks on twitter
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Spring Update 2023: Checking in with Jen and Em
Beyond Mandates: The Essential Input of Residents in Long-term Care Policy (Health Policy Series)
Critical Reflections on Public Engagement (Health Policy Series)
Transformative Public Engagement: Pitfalls, Possibilities and Promise - keynote by Dr. Jamila Michener (Health Policy Series)
Understanding Legitimacy in Public and Patient Engagement, with Katherine Boothe (Health Policy Series)
Deliberation, Democracy and Public Engagement: A Conversation with Kim McGrail (Health Policy Series
The Business and Politics of Engagement, with John Perenack of StrategyCorp (Health Policy Series)
Black Communities, Medical Mistrust and COVID Response, with Alpha Abebe and Rhonda C. George (Health Policy Series)
”Flipping the script” on narratives about Black communities and engagement, with Alpha Abebe and Rhonda C. George (Health Policy Series)
Health Policy Series Kick-off!: A retrospective look at public engagement, with Julia Abelson
Onwards and upwards: Jen and Emily check in
Season 3 Finale: Patient Partner Reflections, brought to you by OSSU
Moral Distress in Engagement Professionals, with Mark Weir
Engagement in Context: Reflections from Jenn Broad and Paula Tookey of the South Riverdale Community Health Centre
Discussing Failures in Participatory Research, with Lori Ross
We‘re looking for patient partner stories and experiences!
Interview Extra: Advocacy and Health Equity, feat. Biba Tinga of the Sickle Cell Disease Association of Canada
Equity, Diversity, and Patient Engagement - with Dr. Nav Persaud
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