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We know Fetal Alcohol Spectrum Disorder isn’t in the spotlight very much as it remains one of the most misunderstood or misdiagnosed disorders yet is the most common developmental disability. It is so important for us to work together to get the messages out, that I knew I just had to reach out when I heard about a new FASD podcast.
Jessica Rutherford, a final-year Ph.D. student in the School of Design and Creative Arts, with her friend, colleague, and caregiver of three children on the Spectrum, Clare Devanney-Glynn recently launched the United Kingdom’s first FASD podcast. Spotlight on FASD aims to raise awareness of FASD, highlight the risk of drinking alcohol during pregnancy, share strategies around parenting and education, and have open conversations around real-life experiences.
“We want to normalize it. It is what it is.”
This is an interesting interview as we discuss FASD from not only the caregiving perspective but also from a front-line worker perspective.
We talk about both women’s origin story with their journey to FASD, as well as:
We also discuss grief and loss, what it is for Clare and how she manages it, why Jessica chose FASD as the focus for her Ph.D., as well as what they would like the future for FASD to look like. Really interesting episode with the two roles converging into a common way forward.
Check it out and let me know what you think!
Show Notes:
Facebook: Spotlight on FASD
YouTube: Spotlight on FASD YouTube ChannelPodcast
Email: spotlightonfasd@gmail.com
Support the Show.
#117 Rhonda & Shawn: How to love someone with FASD who’s hurt someone
#116 Stephanie Burns: How To Stay Healthy During The Hard
#115 Tara Soucie-Noble: A Wife in the FASD Life
#114 FASD in Ireland with Tris and Scott
#113 Talking about Embraced with Joel, Jodee and Justen
#112 Ask Me Anything about FASD with Jeff Noble
#111: Jillana Goble: Reflections on Fostering, Adoption and FASD
#110: What is Behind Aggression in FASD and What to Do
#109 Olga and Serhii: A New Chapter for this FASD Family From Ukraine
#108 Part 2 of Candid Conversation with Jessica Birch
#107 Candid Conversation with Jessica Birch: an Advocate and Adult with FASD
#106 Judy Pakozdy Lessons Learned from a 40+ Year FASD Journey
#105 Talking FASD with Oshay’s Maryelen and Paula Mcphail
#104 Dr. Catherine Lebel: New Study on low levels of prenatal alcohol exposure
#103 Jeremy and William: When Pro Wrestling Meets FASD
#102 Bryan Post: How to Move From Control to Connection with your Child
#101 Sandra Butcher: The Time is Now for FASD in the U.K.
#100 A Meeting with My Mentor: 10 FASD Tips from Donna Debolt
#099 Insight on Trauma, Attachment and Sensory Systems
#098 Dr. Katy Flannigan and Dorothy Reid: What does strengths based even mean?
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