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We know Fetal Alcohol Spectrum Disorder isn’t in the spotlight very much as it remains one of the most misunderstood or misdiagnosed disorders yet is the most common developmental disability. It is so important for us to work together to get the messages out, that I knew I just had to reach out when I heard about a new FASD podcast.
Jessica Rutherford, a final-year Ph.D. student in the School of Design and Creative Arts, with her friend, colleague, and caregiver of three children on the Spectrum, Clare Devanney-Glynn recently launched the United Kingdom’s first FASD podcast. Spotlight on FASD aims to raise awareness of FASD, highlight the risk of drinking alcohol during pregnancy, share strategies around parenting and education, and have open conversations around real-life experiences.
“We want to normalize it. It is what it is.”
This is an interesting interview as we discuss FASD from not only the caregiving perspective but also from a front-line worker perspective.
We talk about both women’s origin story with their journey to FASD, as well as:
We also discuss grief and loss, what it is for Clare and how she manages it, why Jessica chose FASD as the focus for her Ph.D., as well as what they would like the future for FASD to look like. Really interesting episode with the two roles converging into a common way forward.
Check it out and let me know what you think!
Show Notes:
Facebook: Spotlight on FASD
YouTube: Spotlight on FASD YouTube ChannelPodcast
Email: spotlightonfasd@gmail.com
Support the Show.
#037 Aliy Brown: Providing Supports in Scotland and Beyond
#036 The Dougherty Dozen Doesn’t Quit
#035 Amy Patterson: Solutions for Siblings
#034 Niki Marshall: A Bad A$$ Birth Mom
#033 Sara Messelt: Arming FASD Advocates
#032 Dr. Jacquie Pei: Towards Healthy Outcomes: A Brand New FASD Intervention Model
#031 Annette Kunzman - A Moth to a Flame or Helping Teens Transition
#030 Sheila Burns: Turning Regret into Momentum
#029 Ali McCormick: FASD Service (Dogs) with a Smile
#028 Rebecca Tillou: Perseverance Pays Off
#027 Paula Schuck Shares Tips for Teens and FASD
#026 Dr. Jeffrey Wozniak: A Conversation About Choline
#025 Jodee Kulp: The 40 Year Parenting Plan
#024 Dr Vanessa Spiller: Little Things Make a Big Difference with FASD
#023 Barb Clark talks FASD, Rages and Trauma Informed Care
#022 Matthew Pakozdy Winning With FASD Supports
#021 Colette Philcox, From the Streets to Success
#020 Brian Philcox The Ignorant FASD Philosopher
#019 Lisa Brownstone and the Eighth Sense
#018 Susan Elsworth: FASD Knowledge Bombs from a MOM
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