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We know Fetal Alcohol Spectrum Disorder isn’t in the spotlight very much as it remains one of the most misunderstood or misdiagnosed disorders yet is the most common developmental disability. It is so important for us to work together to get the messages out, that I knew I just had to reach out when I heard about a new FASD podcast.
Jessica Rutherford, a final-year Ph.D. student in the School of Design and Creative Arts, with her friend, colleague, and caregiver of three children on the Spectrum, Clare Devanney-Glynn recently launched the United Kingdom’s first FASD podcast. Spotlight on FASD aims to raise awareness of FASD, highlight the risk of drinking alcohol during pregnancy, share strategies around parenting and education, and have open conversations around real-life experiences.
“We want to normalize it. It is what it is.”
This is an interesting interview as we discuss FASD from not only the caregiving perspective but also from a front-line worker perspective.
We talk about both women’s origin story with their journey to FASD, as well as:
We also discuss grief and loss, what it is for Clare and how she manages it, why Jessica chose FASD as the focus for her Ph.D., as well as what they would like the future for FASD to look like. Really interesting episode with the two roles converging into a common way forward.
Check it out and let me know what you think!
Show Notes:
Facebook: Spotlight on FASD
YouTube: Spotlight on FASD YouTube ChannelPodcast
Email: spotlightonfasd@gmail.com
Support the Show.
#097 Olga and Serhii: An FASD Family on the Front Lines in Ukraine
#096 Alex Duthie: Humor Through Hard FASD Times
#095 (DiG)ging into FASD & Genetics
#094 Pascal Gagné: FASD and Sexuality
#093 HOW PREVELANT IS FASD IN THE U.K.?
#092 Dan Dubovsky: Best Tips for Advocacy, Self Care and Arguing
#091 Danna Ormstrup: Helping Schools Understand Your Kids And FASD
#090 Dr. Peter Choate: Trauma, FASD and Prevention
#089 Laurie Whyte: The Value of Vulnerability
#088 Jennifer Wisdahl: Leading the Way in the U.S.A
#087 Ngaire Meadows: No Physical Aggression in a Year!
#086 Kelly Rosenbender: From Struggling Single Mom to Informed and Confident Advocate
#085 Chandra and Jordan Smith: The Power of Same Page Parenting
#084 Angelene Bruce: Throwing FASD Stigma out the Window
#083 Angela Geddes: FASD: A Complicated & Beautiful Brain
#082 Jo Garofalo: FASD The Hidden Disability.
#081 Natalie and Cindy: How to Homeschool
#080 Dr Raja Mukherjee: What Happens When We Never Give up on FASD
#079 Audrey McFarlane: FASD Month, Advocacy and Strategies
#078 Emmaus Holder: An Epic FASD Journey Across America
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