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We know Fetal Alcohol Spectrum Disorder isn’t in the spotlight very much as it remains one of the most misunderstood or misdiagnosed disorders yet is the most common developmental disability. It is so important for us to work together to get the messages out, that I knew I just had to reach out when I heard about a new FASD podcast.
Jessica Rutherford, a final-year Ph.D. student in the School of Design and Creative Arts, with her friend, colleague, and caregiver of three children on the Spectrum, Clare Devanney-Glynn recently launched the United Kingdom’s first FASD podcast. Spotlight on FASD aims to raise awareness of FASD, highlight the risk of drinking alcohol during pregnancy, share strategies around parenting and education, and have open conversations around real-life experiences.
“We want to normalize it. It is what it is.”
This is an interesting interview as we discuss FASD from not only the caregiving perspective but also from a front-line worker perspective.
We talk about both women’s origin story with their journey to FASD, as well as:
We also discuss grief and loss, what it is for Clare and how she manages it, why Jessica chose FASD as the focus for her Ph.D., as well as what they would like the future for FASD to look like. Really interesting episode with the two roles converging into a common way forward.
Check it out and let me know what you think!
Show Notes:
Facebook: Spotlight on FASD
YouTube: Spotlight on FASD YouTube ChannelPodcast
Email: spotlightonfasd@gmail.com
Support the Show.
#017 Aubrey Page: Life in the Military and as an FASD Caregiver
#016 FASD & Aggression with Dr. Mansfield Mela
#015 Michael Harris-Understanding and Managing Anxiety
#014 Homeschooling in a Pandemic with Darlin Dee
#013 R.J. Formanek: From Emancipation to Innovation and Inspiration
#012 Dr. Ira Chasnoff Talks FASD and The Online World
#011 Elizabeth Anne Russell Helping Birth Moms Heal
#010 MRI'S and The FASD Brain with Dr. Catherine Lebel
#009 Jennifer VanLeuven Shadel of The Trauma Momma Sitcom
#008 Yvonne and Nicole An FASD Mother Daughter Duo
#007 FASD and Sleep with Dr. Ana Hanlon-Dearman
#006 FASD Parent and Peer Mentor Jody Jordan
#005 Tamra Cajo An FASD Diagnosis with Mindfulness in Mind
#004 Maggie May Amazing Adult with FASD
#003 Gigi Davidson Founder of FASD Communities
#002 Canfasd Executive Director Audrey McFarlane
#001 Welcome to The FASD Success Show!
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