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We know Fetal Alcohol Spectrum Disorder isn’t in the spotlight very much as it remains one of the most misunderstood or misdiagnosed disorders yet is the most common developmental disability. It is so important for us to work together to get the messages out, that I knew I just had to reach out when I heard about a new FASD podcast.
Jessica Rutherford, a final-year Ph.D. student in the School of Design and Creative Arts, with her friend, colleague, and caregiver of three children on the Spectrum, Clare Devanney-Glynn recently launched the United Kingdom’s first FASD podcast. Spotlight on FASD aims to raise awareness of FASD, highlight the risk of drinking alcohol during pregnancy, share strategies around parenting and education, and have open conversations around real-life experiences.
“We want to normalize it. It is what it is.”
This is an interesting interview as we discuss FASD from not only the caregiving perspective but also from a front-line worker perspective.
We talk about both women’s origin story with their journey to FASD, as well as:
We also discuss grief and loss, what it is for Clare and how she manages it, why Jessica chose FASD as the focus for her Ph.D., as well as what they would like the future for FASD to look like. Really interesting episode with the two roles converging into a common way forward.
Check it out and let me know what you think!
Show Notes:
Facebook: Spotlight on FASD
YouTube: Spotlight on FASD YouTube ChannelPodcast
Email: spotlightonfasd@gmail.com
Support the Show.
#057 Dr. Mansfield Mela: Prenatal Alcohol Exposure: A Clinician's Guide
#056 Chris Fillion: From Incarceration to Inspiration
#055 Brain Domains, Diagnosis and FASD Research with Dr. Valerie Temple
#054 Simon Laplante: Inside Education and Housing
#053 NOFASD Australia: A Global Leader for FASD
#052 Tracy Mastrangelo: School Success
#051 Megan Tucker: FASD and Harm Reduction
#050 Linda Rosenbaum: Not Exactly as Planned
#049 Katie Adliff: FASD and Independence
#048 How to Build Your Resilience with Patricia Morgan
#047 The FASD Project: Uncovering an Epidemic in a Pandemic
#045 Jay Derting: Doing it for the Dads
#044 Lisa Murphy: Leading by Example at the Lakeland Centre for FASD
#043 Dr. Susan Rich: Calling a Spade a Spade
#042 Natalie Vecchione: Mom on a Mission with a Microphone
#041 The visions and voices of adults with FASD
#40 Katharine Dunbar Winsor: A Rock on The Rock
#039 Claire Mafranc from Struggling Single Mom to Successful with a Vision
#038 The Berrys: Transforming From Trauma
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