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We know Fetal Alcohol Spectrum Disorder isn’t in the spotlight very much as it remains one of the most misunderstood or misdiagnosed disorders yet is the most common developmental disability. It is so important for us to work together to get the messages out, that I knew I just had to reach out when I heard about a new FASD podcast.
Jessica Rutherford, a final-year Ph.D. student in the School of Design and Creative Arts, with her friend, colleague, and caregiver of three children on the Spectrum, Clare Devanney-Glynn recently launched the United Kingdom’s first FASD podcast. Spotlight on FASD aims to raise awareness of FASD, highlight the risk of drinking alcohol during pregnancy, share strategies around parenting and education, and have open conversations around real-life experiences.
“We want to normalize it. It is what it is.”
This is an interesting interview as we discuss FASD from not only the caregiving perspective but also from a front-line worker perspective.
We talk about both women’s origin story with their journey to FASD, as well as:
We also discuss grief and loss, what it is for Clare and how she manages it, why Jessica chose FASD as the focus for her Ph.D., as well as what they would like the future for FASD to look like. Really interesting episode with the two roles converging into a common way forward.
Check it out and let me know what you think!
Show Notes:
Facebook: Spotlight on FASD
YouTube: Spotlight on FASD YouTube ChannelPodcast
Email: spotlightonfasd@gmail.com
Support the Show.
#077 The importance of an FASD community
#076 The Bofenkamps: An FASD Family Divided Then United
#075 Wine Mom Culture and FASD Prevention
#074 Patti Crouch: FASD Life on the Denial Bus
#073 Dr. Aamena Kapasi: FASD and Therapy
#072 Dr. Christie Petrenko: Changing the Story About FASD
#071 Miranda Eodanable: Educational Psychologist
#070 Keeping You and Your Family Safe Online: Jess McBeath
#069 Bill Michaud: Lessons from Someone Who Gets it
#068 Eating Disorders: Insight and Support with Dr. Anita Federici
#067 Amanda Burley: FASD Miracle Baby
#066 Dr. Catherine Lebel: New INFO on FASD and the Brain
#065 Talking Social Work, FASD and Parents Helping Parents
#064 Reinier deSmit: My FASD Engine
#063 Dr. Nancy Poole: FASD Prevention - More than Awareness
#062 The FASD Justice League: Doctors McLachlan and Flannigan
#061 FASD from all perspectives: A Mom, A Professional, An Individual with FASD
#060 Vanessa Hrvatin: Journalist and FASD Champion
#059 Shana Mohr: FASD Trainer, Advocate and Mom
#058 Nancy Lockwood: Practical Tools and Tips for Caregivers and Advocates
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